Leicester, Leicestershire and Rutland Data for Research.

Welcome to LLR-DfR Resource

Anonymous records from 30 GP practices in Leicester, Leicestershire and Rutland, have been pooled and made available for use in ethically-approved healthcare research. To evaluate the utility of this dataset for addressing research questions, bona fide researchers can safely explore and profile this Leicester, Leicestershire and Rutland Data for Research (LLR-DfR) dataset, by using a dedicated online query tool or by seeking help from staff at the Leicester HDR Facility. Thereafter, researchers can seek secure access via an assisted and responsible access request process.

Get Started

About

The LLR-DfR dataset is securely managed by the non-profit Leicester Health Informatics Service (LHIS). They will provide customised portions of the data for approved research, for a minimal fee, with this process being facilitated by the research group of Professor Anthony Brookes at the University of Leicester. This team also provides an online tool and support service via which the dataset can be initially profiled to evaluate its suitability for use in addressing specific research questions.

The LLR-DfR dataset comprises a pool of primary care records from the 1920’s onwards, approved for research use by 30 donor practices. It includes records on a total of >250,000 individuals, and comprises information regarding: Patient visits and outcomes; and Patient medication and immunisation history (including type of drug, dosage, means of administration and repeats). Data are encoded with SR and SNOMED codes for patient medical history, and IDMultiLex and SR coding for medication and immunisations. Personal, identifiable and sensitive data elements are not available for release to researchers.

The online query tool for profiling LLR-DfR is currently only available for use by University of Leicester researchers (wider access will be arranged in the future). Other researchers should reach out via the contact options below to receive help in profiling the dataset before initiating an access request.

Access Process

Access to the LLR-DfR follows a responsible governance process, the details of which may vary from institute to institute, and this is something we can assist with. In general, the workflow be something like the following:

Initial Preparation:
1. Get advice from your local Research Ethics Governance and Integrity (REGI) advisors.
2. Seek conditional approval for your research idea from the LLR-DfR Controller.
3. Consult your local Information Assurance Services and research computing team, to determine a suitable location for data storage/use.
Complete whatever data risk assessment process is required by your organisation.
Submit your proposal into your local systems for ethics, sponsorship (if required), and other necessary approvals.
Once approvals are given:
1. Create and agree a Data Sharing Agreement with LHIS, to specify responsibilities, payment, and data export (e.g., data elements, filtration criteria, SNOMED/READ Codes, obfuscation, secure transfer).
2. Create a Record of Processing Assessment (ROPA) with your legal department.
3. Arrange data access with LHIS.

To make an access request, please initiate the process by contacting us via the options below, outlining your needs.

HELP DESK

Need Help? Contact Us

Health Data Research Facility (HDR-F) staff are available to provide assistance with profiling and accessing the LLR-DfR dataset. Please get in touch.

Email Us

healthdataresearch@leicester.ac.uk

Acknowledgements

See Our Acknowledgements

Prof. Nigel Brunskill

The LLR DfR dataset was collated under the supervision of Prof. Nigel Brunskill, with the agreement of the participating GP practices and the LLR-DfR Forum.

Prof. Anthony Brookes

Provisioning of the LLR-DfR dataset to researchers, including the associated online query tool and concierge helpdesk, is enabled by the team of Prof. Anthony Brookes.